Dept of Pediatrics, University Hospital, SE 581 85 Linköping, Sweden
Background
Since the number of newborns with myelomeningocele (MMC) is decreasing a national network of neuropaediatricians with long experience of MMC has been founded in Sweden. Our first task was to identify the areas of medical concern in adolescents with MMC.
Materials and methods
A total national population study has been performed. The first analysis concerns those born 1986 – 89 and is based on review of medical records.
Results
175 adolescents born 1986–89 were living in Sweden on July 1st 2004, 86 females and 89 males. Their special medical characteristics are presented in Table
Individuals with MMC
No
%
No
%
Mental retardation (MR)
46
26
Recurrent urinary tract infections
27
15
Active epilepsy
24
14
CIC
149
85
Hydrocephalus
150
86
Anticholinergic medication
70
40
- Shunts
145
Surgery (eg Mitrofanoff)
42
24
- Ventriculocisternostomi
5
Incontinence pads
125
71
Tethered cord syndrome (Op)
62
36
Reduced kidney function
3
1,7
No independent walking indoors
92
53
Anal water irrigation
103
59
Walking with aids
35
20
MACE
17
10
Walking independently indoors
47
27
Gastrostomy
6
3,5
Orthopedic surgery/ortoses
128
73
Respiratory aids
5
3
Scoliosis (operated 44)
74
42
Recurrent bedsores
34
19
Conclusion
In Sweden approximately 40 adolescents with MMC will yearly reach adulthood the next decennium. A majority of them will have medical problems with need for a multidisciplinary team approach in order to supply the best care in adulthood.