 Oral presentation"Whose bowel is it anyway?" A case study illustrating the practical difficulties resulting from a childhood procedure that impinges upon an adult with spina bifida attempting to live independentlyLissa Wright  Princess Royal Spinal Injuries Centre, Osborn Building, Northern General Hospital NHS Trust, Herries Road, Sheffield, S5 7AU, South Yorkshire, UK  author email corresponding author email
from 51st Annual Meeting of the Society for Research into Hydrocephalus and Spina Bifida
Heidelberg, Germany. 27–30 June 2007 Cerebrospinal Fluid Research 2007,
4(Suppl 1):S16doi:10.1186/1743-8454-4-S1-S16
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20 December 2007 |
First paragraph (this article has no abstract)
John is 23 years old, has spina bifida, shunted hydrocephalus and left hemiparesis. John had caecostomy with insertion of a gastrostomy button 10 years ago for the purpose of antegrade colonic enema (ACE) bowel management. The bowel washouts caused severe abdominal discomfort and were ineffective. The button was therefore replaced by a jejunostomy feeding tube, which delivered the fluid into the mid transverse colon making him continent with a regime of washouts every third day. After attending college for several years, John moved to live alone in a flat, away from his very supportive parents. John's physical disabilities prevented him from completely managing his bowel irrigation independently. Community nurses have insufficient resources to assist John without detracting from his limited social life. Care staff are willing but not allowed to assist. | 
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