This article is part of the supplement: 49th Annual Meeting of the Society for Research into Hydrocephalus and Spina Bifida .

Oral presentation

Survey of individuals with spina bifida in Maryland, USA, 2004

Eric Levey , Toni Shumate, Susan Demetrides, Katharine Kinsman and Joy Nanda

Kennedy Krieger Institute 707 North Broadway Baltimore, MD 21205 USA

author email corresponding author email

from 49th Annual Meeting of the Society for Research into Hydrocephalus and Spina Bifida
Barcelona, Spain. 29 June – 2 July 2005

Cerebrospinal Fluid Research 2005, 2(Suppl 1):S11doi:10.1186/1743-8454-2-S1-S11

Published:	30 December 2005

First paragraph (this article has no abstract)

The Chesapeake-Potomac Spina Bifida Association (CPSBA) conducted a survey of individuals with spina bifida (SB) in Maryland during the first half of 2004 in order to assess their current status and unmet needs. The survey was sponsored by the Maryland State Office of Genetics and Children with Special Health Care Needs (OGCSHCN). The findings of this survey are to be used to inform programs and services and to identify the most important self-perceived challenges faced by individuals with spina bifida in the areas of health, education, daily living and employment and to determine areas of unmet service need.